December 4, 2009

Connor's Journey

My good friend, Tiffany, has a 12 year old son with a liver disease called Congenital Hepatic Fibrosis. I got an e-mail from Tiffany yesterday and I just wanted to share it with you.

"This past year has been a particularly difficult one with more trips than I can count to the hospital. Through all of this Connor found something that keeps him motivated and inspired, bike riding. He has made the decision to compete in Race Across America this June. It is dubbed the hardest bike race in the world. He had to get special permission to compete as he is the youngest person to ever attempt it. Connor has a team called “Connors Hope” and I am honored to be on it with him as well as Jared and Jared’s brother Ryan. Connor set a goal of raising $100,000 to go towards research, the registry, and a benevolence fund for those in need during transplantation. Last year Jared competed in this race and he personally had a goal of $10,000. So you can see the stretch here. Connor recently was told that he would be needing a major surgery that would take him off his bike for 9 weeks. Connor was very concerned that doing so would halt his progress in bike training as well as raising money for the race. Through many tears I shared with him that I will be doing everything in my power to continue to help him raise money during this time of recovery.

I am not writing to you asking for money or a donation towards the team, however we always appreciate it if you choose to. I am writing to you asking that you please start reading daily Connors blog and that you forward his blog address to all of your friends and so on. If Connor gets enough readers on his blog finding corporate sponsors will be much easier. As well as he will be able to sell space on it that can go towards his overall goal. I can tell you reading his blog will most likely put a smile on your face he always has clever ways of seeing the world and all of its challenges.

I continue to learn so much from Connors example and both Jared and I try to make sure that he is learning to take his personal trials and turn them into something good. Two days ago on our way to another doctor appointment Jared and I asked Connor his feelings about his Liver Disease and his exact words were “well I know I wouldn’t be the same person I am if I didn’t go through this and I know I wouldn’t even attempt the things I do if it wasn’t for this challenge”. I thought that pretty much summed him up always looking for the blessings."

You can visit Connor's Blog by clicking HERE

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